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CONTACT INFO
  • Address: P.O. Box 910607
    Saint Geroge, UT 84791-0607
  • Phone: 1-801-841-4900
  • Email: support@syncnet.com

Aicardi Syndrome Newsletter

www.aicardisyndrome.org/

c/o Denise Park Parsons
Louisville, KY 40245
US
502-244-9152

Updated on Tuesday, September 06, 2011← Back

Bio

Publications

Newsletter to member families 2-3 times/year. Yearbook of daughters w/syndrome every 2 years.Research updates twice a year.

Conventions

International conference - even-numbered years, July in U.S.

Specialties:

  1. Medicine - Genetics

Information Summary

Member Count

250

Year Founded


Staff Count

0

Budget

Less than $50,000

Category

Medicine - Genetics

Type

National Association


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