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CONTACT INFO
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Share and Care Cockayne Syndrome Network

cockaynesyndrome.org

P.O. Box 282
Waterford, VA 20197
US
703-727-0404

Updated on Monday, June 13, 2022← Back

Bio

Welcome to the Share and Care Cockayne Syndrome Network. Our mission is to help children with Cockayne syndrome and their families improve quality of life through support, education, and research. Share and Care Cockayne Syndrome Network focuses on their goal to help families obtain an earlier diagnosis and share information on drugs and procedures that prove to be beneficial to children with Cockayne syndrome.

Publications

newsletters

Conventions

Annual

Specialties:

  1. Medicine

Information Summary

Member Count

1000

Year Founded


Staff Count

2

Budget

Less than $50,000

Category

Medicine

Type

National Association


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