Dystrophic Epidermolysis Bullosa Research Association of America

About This Association

debra of America's mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. We envision a future where the burdens of EB are eased and eradicated, empowering those affected to lead lives free from the challenges of EB.

Publications

Conventions

Annual

Specialties:

1. Research

Information Summary