Industry and Marketing Research. There is much to be learned from professional and trade associations.
The Alagille Syndrome Alliance is an international nonprofit started in 1993, representing the ALGS community and based in the US. This organization is comprised of 1 staff members and 5 board members, working remotely. The Board of Directors of the Alagille Syndrome Alliance locations span internationally allowing for more global outreach, a top priority for the ALGSA. Together, we continue the work of the organization with the sole purpose of making living a life with Alagille Syndrome easier. The Alagille Syndrome Alliance staff and board includes ALGS patients and family members, all deeply understanding of the complex and difficult nature of ALGS and circumstances resulting from such difficulty.