About This Association
Newsletter to member families 2-3 times/year. Yearbook of daughters w/syndrome every 2 years.Research updates twice a year.
International conference - even-numbered years, July in U.S.
- Medicine - Genetics
BudgetLess than $50,000
CategoryMedicine - Genetics
c/o Denise Park Parsons
Louisville, KY 40245
Please note: We never sell or share your email address!